I cannot express enough how much music means to me and can greatly help your mood. I honestly don't think that I could have made it this far in this painful journey if I didn't have music. As you may have noticed in my first blog for Music Monday that I've been listening to a lot of Asking Alexandria and this week is no different. I tend to have periods of time where I'll be really into an Artist, song or genre. Here's this weeks ear candy:
I feel like there comes a point in everyone's medical journey where your doctor either say they have no further options or they try to re-treat with something that you've already tired. Like trying something you've already tried will magically work now? Isn't the definition of insanity trying the same thing over and over expecting different results? We are often looked over or just end up going in circles. You are now at a crossroads. What do you do?
Your two choices from here are to listen to your doctor and re-visit past treatments or you try and go it alone and figure out some alternatives that work for you. I've decided to take my health into my own hands and try to come up with alternatives to try for myself. Being that there are only two medications to try for Endometriosis, Lupron (tried and hated that) or Visanne (already on a double dose of that), I felt I needed to try something new. My doctors sure aren't offering me any options I like or any alternatives to try.
The first time I tried cannabis I fell in love with it and never looked back. I been smoking daily for the last 5 years and I feel it has greatly benefited me and my symptoms. It truly is a plant with many healing properties. Recently, I thought if that helps me then other natural remedies could help me as well. I've started to explore some other avenues and that's how I got started with product testing. I kept seeing members of the Facebook page and private group asking the other ladies if they'd tried different products. I look forward to trying things like essential oils, pain rubs and any other products I see mentioned. Check out the product reviews I've done so far here.
I'm so tired of just masking symptoms of the problem with medication rather than actually helping control symptoms. What I've learned is that doctors are just trying to treat the symptoms and not trying to actually treat/work to cure the disease. Do you think doctors and hospitals make money from healthy people? Why would they want to lose a customer? These organizations make money from sick people. They are in the business of making you think you need to take all these medications and see them all the time. Now I'm definitely not saying medications don't help because they can. Some have helped me when I needed it but maybe there are better options we can try.
I'm excited for you to be along for the journey of holistic and alternative medicine. I think it's important to ask questions and really know what's going on with your body. I never believed anything could help me and I just accepted that I would always be in pain but I realize that's not true!
Comment below with any products that you'd like to see my review or any other alternative medicine you think could be really beneficial to the people in our community. What has helped your Endo?
Welcome to my first Music Monday! Every Monday I'm going to post the songs that I've been listening to all week. Everyone needs a little ear candy and music is just down right therapeutic! Here is what I've been listening to the last week:
• Breathe Carolona- Sellouts
• Asking Alexandra- A prophecy
• Asking Alexandra- Where did it go?
• Slaves- I'd rather see your star explode
• Kane Brown- What ifs
• Eminem ft Beyonce- Walk on water
• Cardi B- Bodak yellow
• Luke Combs- When it rains it pours
• Logic- 1-800-273-8255
• A boogie wit da hoodie- Drowning
• Halsey- Bad at love
• Pink ft Eminem- Revenge
I hope that you enjoy your week and don't forget that music does that soul good!
Could a saliva sample change the diagnostic process in a big way? DotLab thinks that they have figured out how to diagnose Endometriosis through a bio-marker that seems to be elevated in those with Endometriosis.
Endometriosis is a difficult disease to diagnose and treat because symptoms often go unnoticed, over looked by doctors and symptoms over lap with many other illnesses. A saliva sample or blood sample diagnoses would be a game changer. Currently the only way to diagnose Endometriosis is through surgery called a laparoscopy where they use a small camera to look inside the abdomen to physically see the Endometriosis.
Although there is currently no data available for this new possibility I remain hopeful that this will be a complete change in the way we diagnose Endo!
We all know when a flare hits it can completely cripple you, so what do you do to prepare yourself for when one comes on? I like to have everything I need ready for me to use it. Be ready for the pain to hit at any moment.
What's in my Endo survival kit?
What's in my Endo travel kit?
Imagine if Endometriosis could be detected by a simple blood test. If you could have your answers up to 10 years earlier. If you could know the answer you're looking for so much easier.
I have joined forces with Vinay Singh in hopes to help raise awareness and funding for his research. He has identified a bio marker that could make diagnoses so much easier. A blood test, that's it, no surgery to find out if you have Endometriosis.
As a sufferer of Endometriosis this is exciting news. We can avoid surgery for diagnosis and the use of hormone therapy when you may not need it. We shouldn't have to have surgery to find out you have Endometriosis and then have more surgery to actually treat the Endometriosis. We should not longer have to go through the trial and error process where you try Lupron or Visanne and if that doesn't help then it "must not be Endometriosis" but you don't actually know.
I hope that in working with someone like Vinay Singh we can change the way that we diagnose and find better, more effective treatment for Endometriosis while spreading awareness and changing the way Endometriosis and the people with it are treated.
Please if you can donate to Vinay Singh's go fund me campaign. Anything you can donate is greatly appreciated. Thank you so much!
I started Endometriosis and me as a way to connect women going trough the same struggle. For people to come together to share our stories, share experiences with treatments, and to just support one another no matter what part of their journey they're in. I wanted a safe place where anyone could come and talk about the evil that is Endo.
What started off as a website where I could put together information and blog about my personal journey with Endometriosis. When I realized that the website was attracting attention I decided to start a Facebook page where I could start my social media following. Once the page gained followers and I received messages from ladies asking questions or looking for a place to talk to others about what they're going through. The Facebook private group was born and is growing daily.
I am working to update the website with better information and a better layout. The Facebook page has grown to over 45,000 likes and the private group over 6,000! I have been working on multiple logos and shirt styles to get the clothing line started. I can see so much for the future of Endometriosis and me and all our members!
Felt like crap yesterday so I spent the day on the couch. It was my boyfriends Friday so he got some beers and brought me home some vodka coolers. I already was feeling like poo so I didn't drink any. Well don't I just wake up to feel like I did drink. Bloated, in pain and a tummy ache I go to go for a pee and the dog has torn up the toilet paper roll. In agony I kneel down to pick up all the shreds after I struggle to get Roman in the cage. Finally, I get to the bathroom and more than pee if you know what I mean. I get back to bed with my heating pad on and pass out for a couple more hours.
Awoken by stabbing pains in both ovaries, the feeling of contracting in the uterus I no longer have and a tummy ache I go to the bathroom to take a hot shower. The hot water feel good but standing is a struggle so I sit in the shower and let the hot water run over my pelvis for an unknown amount of time. After I feel I have wasted enough water I change in over to a bath and try to relax my body in the warm water until my body falls asleep. I get out and more than pee again ( wink wink) but when I flush the toilet nothing happens, try to flush again and water fills the bowl. Fuck. Get the plunger from under the sink. Plung plung plung. No movement. ugh. Ok take a break and come back to it. I sit down on the couch and wait for my meds to kick in to go back and tackle the situation. While I'm trying to chill out a bit the dog starts vomiting. Great, clean that up and go back in to the bathroom to check if it has drained at all (noting I pour Draino in also). No movement! Why!? I try again to use the plunger and nothing. By now my boyfriend woke up and I told him what happened. We make a plan to go to the Canadian Tire to get a better plunger. Come back and still the bowl is full. Use the new plunger for what seems like a year and finally the damn thing drains! Back aching and abdomen burning I relax for a little bit then go to write this blog post and after I press post it only posts the first sentences. So, yes, this is my second time writing this. Please no more today. I can't take it.
I feel like I want to cry over everything right now! I put the damn laundry card down and a second later it's gone no where to be found!? I look everywhere for the damn thing and it's no where. I feel like I'm going crazy and everyday some other shit storm starts and I have to deal with it. I have haven't learned anything else from having Endometriosis the one thing I have learned is that relationships are hard! Having to manage your illness, feeling like shit, trying to get through the day and then you have to deal with what ever your spouse puts on you. I feel like I haven't been myself in a long time, I feel like pain and Endometriosis are consuming, I can't do thing I used to be able to and be as active in life and friendships as I like to be! I sit or lay in pain and feel sorry for myself because I'm so tired and sore! I miss being young and energetic.
Today I make a change, I will not longer apologize for feeling ill. I won't feel sorry for saying no. It's too hard and not logical to please everyone. I need to make sure I am happy first, I need to feel good before I can make anyone else feel good. I so badly want to have success in every relationships but sometimes you need to be selfish and do what's right for you. Not everything is going to work out as much as we'd like it too.
I have to learn to communicate how I feel better. I get some emotional and mixed up in my feelings that I just end up crying. Does the Endometriosis make me more emotional or am I just emotional.
So I know that I haven't posted in a while but I haven't been feeling the best, I started a new medication called pregabalin (https://www.drugs.com/cdi/pregabalin.html). I have actually noticed a little bit of a difference, I have a little more energy and am a little less achy. I m still working on the Youtube channel and am currently working on a information video answering a lot of question I get from ladies all the time. I just posted a quick update on Youtube. I am working on getting some "Endometriosis and me" T-shirts out as a lot of ladies showed interest in them. I'm thinking I will need to take pre-orders as I am so broke right now. I will be showing the designs sometime very soon! I am so excited that the facebook page is growing so quickly! The facebook group is growing pretty steadily as well. I haven't worked on my book in a while but I still want to have a book of my own out at some point. I am excited for the future of Endometriosis and me!