The last two weeks have been super busy and I have been working on the website a lot. I'm finding working on the website and the product reviews to be a great distraction from my pain. I really hope that my efforts are helping you in some way. You should try to a music to your daily routine to give you a little spirit boost. Here's this weeks tunes!
Maroon 5- what lovers do
Sam Smith- too good at goodbyes
Demi Lovato- sorry not sorry
Liam Payne & Quavo- strip that down
Shawn Mendes- there's nothing holding me back
Hailee steinfeld- let me go
Rock out your week and enjoy the rest of November!!
I started in a sex study at Queen's university here in Kingston. The study is focusing on Provoked vestibulodynia. Provoked vestibulodynia (PVD) is a common chronic genital pain condition affecting approximately 12% of pre-menopausal women. Although parallels have been drawn between PVD and neuropathic pain (NP), no studies have examined self-reported NP characteristics in PVD. This study was lookng to see how your spinal cord and brain stem to see how those areas receive pain.
I only made it past the gynecological exam. In this exam the touch areas of the genital area and have you rate your pain between a one and ten. One being the lowest and ten the highest. Had I gone past this part I would have completed a bunch of questionnaires online. After those you would be booked for an fMRI session at the university MRI facility. In the fMRI session they would have attached an electrode to my hand and used heat to see how your spinal cord and brain and proceeding the pain from the different levels of heat.
Validated NP questionnaires can be useful for doctors who need a better way to assess symptoms of patients with PVP and further research should be done to better treat this condition.
Visit their website here.
I cannot express enough how much music means to me and can greatly help your mood. I honestly don't think that I could have made it this far in this painful journey if I didn't have music. As you may have noticed in my first blog for Music Monday that I've been listening to a lot of Asking Alexandria and this week is no different. I tend to have periods of time where I'll be really into an Artist, song or genre. Here's this weeks ear candy:
I feel like there comes a point in everyone's medical journey where your doctor either say they have no further options or they try to re-treat with something that you've already tired. Like trying something you've already tried will magically work now? Isn't the definition of insanity trying the same thing over and over expecting different results? We are often looked over or just end up going in circles. You are now at a crossroads. What do you do?
Your two choices from here are to listen to your doctor and re-visit past treatments or you try and go it alone and figure out some alternatives that work for you. I've decided to take my health into my own hands and try to come up with alternatives to try for myself. Being that there are only two medications to try for Endometriosis, Lupron (tried and hated that) or Visanne (already on a double dose of that), I felt I needed to try something new. My doctors sure aren't offering me any options I like or any alternatives to try.
The first time I tried cannabis I fell in love with it and never looked back. I been smoking daily for the last 5 years and I feel it has greatly benefited me and my symptoms. It truly is a plant with many healing properties. Recently, I thought if that helps me then other natural remedies could help me as well. I've started to explore some other avenues and that's how I got started with product testing. I kept seeing members of the Facebook page and private group asking the other ladies if they'd tried different products. I look forward to trying things like essential oils, pain rubs and any other products I see mentioned. Check out the product reviews I've done so far here.
I'm so tired of just masking symptoms of the problem with medication rather than actually helping control symptoms. What I've learned is that doctors are just trying to treat the symptoms and not trying to actually treat/work to cure the disease. Do you think doctors and hospitals make money from healthy people? Why would they want to lose a customer? These organizations make money from sick people. They are in the business of making you think you need to take all these medications and see them all the time. Now I'm definitely not saying medications don't help because they can. Some have helped me when I needed it but maybe there are better options we can try.
I'm excited for you to be along for the journey of holistic and alternative medicine. I think it's important to ask questions and really know what's going on with your body. I never believed anything could help me and I just accepted that I would always be in pain but I realize that's not true!
Comment below with any products that you'd like to see my review or any other alternative medicine you think could be really beneficial to the people in our community. What has helped your Endo?
Welcome to my first Music Monday! Every Monday I'm going to post the songs that I've been listening to all week. Everyone needs a little ear candy and music is just down right therapeutic! Here is what I've been listening to the last week:
• Breathe Carolona- Sellouts
• Asking Alexandra- A prophecy
• Asking Alexandra- Where did it go?
• Slaves- I'd rather see your star explode
• Kane Brown- What ifs
• Eminem ft Beyonce- Walk on water
• Cardi B- Bodak yellow
• Luke Combs- When it rains it pours
• Logic- 1-800-273-8255
• A boogie wit da hoodie- Drowning
• Halsey- Bad at love
• Pink ft Eminem- Revenge
I hope that you enjoy your week and don't forget that music does that soul good!
Could a saliva sample change the diagnostic process in a big way? DotLab thinks that they have figured out how to diagnose Endometriosis through a bio-marker that seems to be elevated in those with Endometriosis.
Endometriosis is a difficult disease to diagnose and treat because symptoms often go unnoticed, over looked by doctors and symptoms over lap with many other illnesses. A saliva sample or blood sample diagnoses would be a game changer. Currently the only way to diagnose Endometriosis is through surgery called a laparoscopy where they use a small camera to look inside the abdomen to physically see the Endometriosis.
Although there is currently no data available for this new possibility I remain hopeful that this will be a complete change in the way we diagnose Endo!
We all know when a flare hits it can completely cripple you, so what do you do to prepare yourself for when one comes on? I like to have everything I need ready for me to use it. Be ready for the pain to hit at any moment.
What's in my Endo survival kit?
What's in my Endo travel kit?
My name is Kristen McRobie, I was diagnosed with Stage 4 Endometriosis when I was 21.