The specialist in Ottawa told me he doesn't want to operate to remove my ovaries. He feels as though in doing this I will be at risk for greater problems such as heart, bone and brain health. I'm not sure how to feel. I go in there with my mind made up and know what I want and they make me change my mind and confusing me. I just feel so tired of going around in circles with this disease. I'm feeling as though I'm at a stand still and I'm not sure what my next move should be. They told me my options, basically being the same as I posted last, stay on the current meds and do nothing, double up on the Visanne, go on lupron with add back hormone therapy which they said would basically be the same feeling as actual menopause, after trying both of these too medical trials they will review the process and think about surgery( removal of the ovaries or possible endo removal). I have decided that I will begin with doubling the Visanne, taking 4mg of progesterone.
Luckily, I have just been approved for two more years on disability for a totally for 4 years.
My name is Kristen McRobie, I was diagnosed with Stage 4 Endometriosis when I was 21.